A Few of My Favorite Things

  • God and all that goes with Him
  • Time Spent With Family
  • Bedtime Prayers
  • Family/Group Hugs
  • The Beach
  • Good Friends
  • Good Music
  • Laughter

Tuesday, July 15, 2014

What's It Feel Like

It's been a very long time since I've written specifically about what it's like to live with this ugly old headache. I don't want this to be a "whining post" or an "old poor me type post"; however I do believe that to really know me now, you must know what is going on in my head. So here we go, I'll do my best to put into words what the headache feels like.

To begin with since the pain is constant, there is always some type of background noise in my head. Many times it's just the constant throbbing of the pain (those are the good days). Other times, it feels and sounds like a stake being pounded from the back of my head to the front. With that comes the light and noise sensitivity, most days normal inside lighting feels like the bright sunshine in the middle of the day. If we go outside or places with brighter lighting it's like having all the lights in the football stadium on and shining directly into my eyes. I have some people who have not seen my eyes and on the off chance they see me without sunglasses some of them don't even recognize. There are times that even in the dark the headache itself has a light show that goes on even when my eyes are closed. It's painful and draining simply to deal with just that part. Then you add to that the noise sensitivity. Repetitive noises, squeals, and high pitched sounds are the hardest, but there are also times when just the sounds of a room full of people talking feels like it's being put through a megaphone. Sometimes out of nowhere even small sounds can feel like they come through an air horn.

I know that I am guilty of snapping at people during times when I'm dealing with both sets the noise and the light. It's a knee jerk reaction like yelling “Ouch” when someone steps on your toes. Over the years, my sweetheart has been the one to sit and watch me cry after pushing to be out and about. He is forever my protector and will work to prevent this amount of extra pain when he can. There have been many times when I'm sure people have found us to be very rude, because in stereo we will express displeasure if the noises is one that isn't necessary.
For this reason, it has to be a good day for us to choose to eat out. If the restaurant is one that is full or one that noises bounce off the walls, it becomes even harder. When I was teaching school the lunchroom was the hardest place to be, now it's usually the fellowship hall at church. I want to be a part of family gatherings, church dinners, and conversation before and after church. I will push to the point of needing to make a trip to the ER(which doesn't work for me and is a complete waste of time, but that's how ugly the pain is). There are times when the pain in my head is soo loud I feel like I have to yell over it. There have been times when I wanted to stand in a chair and yell “Shut up” from the top of my lungs. I've learned how not to do just that, but I may leave quickly after services or in the middle of a meal. It doesn't mean that I don't want to be a part of things or that I want to stop all the wonderful visiting and fellowship, so I leave. If my sweetheart sees me leave, he follows relatively quickly and we take home a very disappointed little boy.

I'm not saying all of this to hinder those I love from making a joyful noise when they are together. I just want you to know that I'm not mad or don't want to spend time with you, it's just that I've reached my capacity for handling it all.

As always, it is my prayer that my words are kind and my disposition sweet, but on those days when I fail I ask that you take the above into consideration and forgive me. Many thanks to all. Please keep us in your prayers. There are many times when our plans have to change at the last minute and I'm home alone. It is during these times when the devil tries to work on my faithfulness. Your prayers are coveted. Thanks for reading.


  1. Praying that you will find some relief...that one day you will just wake up pain free!