A Few of My Favorite Things

  • God and all that goes with Him
  • Time Spent With Family
  • Bedtime Prayers
  • Family/Group Hugs
  • The Beach
  • Good Friends
  • Good Music
  • Laughter

Wednesday, November 12, 2014

A Time to Fight

It's been a very long two months. It has felt as if we are having to fight battles on every side that we really shouldn't have to fight. The biggest battle has been with insurance companies and once again my White Knight is fighting for all he's worth. His armor has dings in it and yet he keeps fighting. He's been hit by friendly fire simply because he's the one delivering the message, but he keeps on fighting. I've watched days where I see him weary in ways I haven't seen since the beginning of this battle 16 years ago. You see this wonderful man is a Fix-It man and when he can't fix it then it becomes a huge battle for him.

We're looking at a procedure that if I'm in the 80% success rate would radically change our lives for the better. It would take the pain and interrupt it with electrical impulses. As it seems to be in everything, the insurance company has denied treatment and we are now working through the appeals process. To be honest at first I didn't even want to try this. We've been told so many times over the years that a particular treatment plan has a good success rate for chronic migraines like mine that to even hope becomes a little scary. This is where my sweetheart shines, he's there to listen, to hold me, and then to encourage. So we've now done everything we're suppose to do to prepare for the treatment.

Yesterday we checked off our final “have to” by talking to a psychologist who helps determine how you're dealing with the pain and if your coping skills are adequate. Part of the time was spent in the rehearsal of telling my story and how my pain works and how it affects our lives. I actually don't mind sharing the story anymore, but he has certain questions that he has to ask and that is the part I hate. He was very nice but he wanted to know if I ever get depressed. The answer to that one was “Yes sir I do. I miss out on family outings, church functions etc. and I'm home alone with just God, me, and the pain. I decided a long time ago that a finite hell here on earth is more doable than an infinite one, so I'm not going anywhere.” He then asked if I worry or have panic attacks because of fear of the headache. My answers was along the lines of...I know what my normal high level of pain is, so when the headache behaves like “normal” then I do deep breathing and visualization exercises and we get through it. When it's not normal and I get scared, I wake up my sweetheart and we breathe together until I get centered and the pain comes down enough to deal. I don't know why it always happens in the middle of the night or at church but it does. So that's how we handle it. He asked if it affects our home life...I'm thankful it was a phone consult. I rolled my eyes and went on to describe how we have named the house “The Bat Cave” and that what would have driven me nuts at the beginning of the headache I've learned not to sweat it. If the house isn't as clean as I'd like it to be or the clothes have piled up or the dishes haven't gotten done (all of these things require some type of repetitive noise that pushes the pain higher), then that's life and we worry about the most important things like relationships and loving each other. I told him we have learned to keep a supply of paper goods and plastic ware in the house because dishes aren't something that my sweetheart will do. He does do all the shopping and handles most of the errands and gets my little guy out of the house for some activity because Mama just can't always do it. I've learned to pick and choose what activities to do and when. I've learned that if on a good day I can do some small something outside the house then we're better off.

Anyway after 45 minutes on the phone, he tells me that I've really paid attention over the years and that my coping skills sound like their good and working and that I have a good support system in place. He then told me one of the things he was doing was finding out if I needed to be on something else to help with the depression or if I needed to learn some skills to help me move through the worst parts of the pain, and he felt like I was doing just fine, and he would get his report to the doctor who would be doing the procedure and we would hear from them once the insurance gives the go ahead. Finally he says now I need to collect my co-pay. At this point I handed the phone to my sweetheart because the headache plays with my vision and I can't see the numbers clearly on the card. It also gives the doctor a chance to hear my support system in action. I knew the doctor asked him how he was when my sweetheart said, “I'm hanging in there like a hair in a biscuit. It's been a long 16 years of watching her hurt and we really appreciate anything you can say that will help the insurance company see that we're ready for the procedure.”

I have to say I am very thankful to have this part finished. I'm ready to either hear a yes or no from the insurance company, so that we can learn what the cash cost of the trial procedure and implant would be. Then we can make long range plans. I know that whatever goes on God has this and we will get through this time of waiting just like we have so many other things. Ultimately we know God has this and we just have to do our part by keepin' on keepin' on.

I didn't quote any verses to the doctor while we talked, but he does know that my faith is what I cling to in this battle with pain. It's the unwavering faith that comes with the promises given over and over again. Philip. 4:13 “I can do all things through Christ who strengthens me.” James 5:16 “Confess your trespasses to one another, and pray for one another, that you may be healed. The effective, fervent prayer of a righteous man avails much.”
It's these promises and so many others that get me through. Please pray with us as we hurry up and wait again. Pray that God will give us healing whether through this procedure or something else. Ask him to grant us contentment and peace in the waiting and ask that we glorify Him in all we say and do.

Thanks for listening and praying. Thanks for being there for our little family and for helping us to remember that we are a part of God's family and it is more numerous than we know and that faithful men and women pray for us daily. We feel those prayers. They are what God uses to see us through those long, dark hours of pain. May our Heavenly Father bless all us, and may we look to Him as we prepare and anxiously await His return.

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