A Few of My Favorite Things

  • God and all that goes with Him
  • Time Spent With Family
  • Bedtime Prayers
  • Family/Group Hugs
  • The Beach
  • Good Friends
  • Good Music
  • Laughter
Showing posts with label chronic pain. Show all posts
Showing posts with label chronic pain. Show all posts

Wednesday, March 22, 2017

Times of Tough Spots


During the tough spots of our life, we either end up losing more than we ever thought possible or we slowly find our way through faith and grace a new level of hope that we never dreamed was possible. It's those times we are hurting emotionally, physically, or both that we get to choose to stay stuck in the middle of the yucky, lost place we're in, or we can deal with the hurt and find out that God has worked in our hearts another level of hope, love, and compassion. Sometimes it doesn't take us long to decide, but there are times when it takes long sleepless nights, days spent feeling sorry for ourselves, and time spent examining our hearts under the microscope of what we think is fair or unfair. It can feel as if every breath we draw and every decision made is a battle waged against the devil. He is the deceiver. He wants us to look at what we're dealing with and see an unloving God who plays games with our lives or A God who no longer cares or sees us hurting and fighting. It's been a rough season for me. My heart breaks with those who have lost loved ones, friends who are dealing with chronic pain, and watching those I love walk their own roads of suffering. It's when we are trying so hard to please the Father, yet we continue to encounter road blocks at every turn. I don't have the answers, but I know the One who loves me enough that He suffers right beside me. He cares so much more than I can begin to fathom the depth of that love and grace. So this morning, I'm pushing to see the beauty and growth that comes with suffering.It's the tough times that are used to bring us a deeper capacity for caring and loving. It's those times that help us see that this world is not our home. It's those times that help us see the Sonshine and walk in the warm rays of God's love and grace.
Romans 5: 1 Therefore, since we have been justified by faith, we have peace with God through our Lord Jesus Christ. 2 Through him we have also obtained access by faith into this grace in which we stand, and we rejoice in hope of the glory of God. 3 Not only that, but we rejoice in our sufferings, knowing that suffering produces endurance, 4 and endurance produces character, and character produces hope, 5 and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.

Thursday, April 30, 2015

Faith

Faith
I know that God is good.
I see His grace and love in the sunrise, the birds' song, a child's trusting face.
I know He is in control and faith leaves no room for doubt.

I also see the pain and hurt, the loneliness and shame.
For sin took a perfect world and brought with it death and trouble.
Sin changed man with its promises of power and knowledge.
It left behind a broken world in need of a perfect Savior.
For sin is what brings suffering and God who is always good brought us salvation's glory.

In the quiet of the pain filled nights, my heart wonders why me.
It questions how God who is good could allow all this to happen.
I look at where I am today and know my Savior lives.
For even in the darkest times, His light shines up ahead.
I'm not alone even when I feel like I am, my God is holding me.
His Spirit lives within my heart and brings me hope and love and joy and peace.

So when my soul begins to wonder why, I look back to Calvary's mountain.
I see the mighty Son of God his arms stretched out on the cross held not by the nails but perfect love.
The King who left heaven's glory to pay the debt my sins had wrought.
He was brought from God's presence to a world filled with pain from eternal love to hate.
If my Savior could suffer such cruelty for me and do it all alone then I can walk the road of pain with faith that doesn't doubt for God has promised an eternal life without pain and tears and death.

Wednesday, February 11, 2015

Looking Back to Look Forward

I am constantly amazed at how our Heavenly Father works by using the people who come into our lives for a season but remain in our hearts for a lifetime. We see this easily in our family members, but what about those people who are just a part of our lives for a very specific period of time or maybe those who become a part of our forever families because of the bonds forged in the fires of pain or the joys of this life.

Ecc. 3:11 He has made everything appropriate in its time. He has also set eternity in their heart, yet so that man will not find out the work which God has done from the beginning even to the end.

I see God's hand at work in my life from early moments of childhood to even now as a middle-aged woman. There were bible class teachers and teachers at school who made huge impacts on a very young life helping to shape and mold the opinions and beliefs that I hold tightly to today. The teacher who with patience showed me over and over again how to tie my shoes when I just couldn't seem to get my fingers to work. She helped instill the we don't give up but try and try again. The teacher who washed the skinned knees and calmed a very frightened little who was being chased by a dog and then delivered me safely home to the arms of my sweet Mama. Oh, how big a part they played in who I am today. They helped shape the desire to teach and even when the dyslexia made reading so hard they found things to make me feel like I could conqueror the world.

Deut. 6:4-9-“Hear, O Israel! The LORD is our God, the LORD is one! You shall love the LORD your God with all your heart and with all your soul and with all your might. These words, which I am commanding you today, shall be on your heart. You shall teach them diligently to your sons and shall talk of them when you sit in your house and when you walk by the way and when you lie down and when you rise up. You shall bind them as a sign on your hand and they shall be as frontals on your forehead. You shall write them on the doorposts of your house and on your gates.

Then there are the countless friends from elementary schools scattered across three states and from one side of town to another. Girl Scout leaders who helped a very shy little girl find her voice behind a puppet stage. The mamas of those friends who took the time to make me feel a part of their family as well as my own, began the process of teaching me that family doesn't have to be blood related to be family.

There were also people that taught me what I didn't want to be and that kindness is golden. Some of the lessons were learned from adults and some classmates. There was the teacher who didn't show patience and said ugly things to my “at-risk reading group”. The one who rather than encouraging discouraged me from being willing to work hard to accomplish a goal. Those were important lessons to learn. It was the friend's dad down the road who spoke ugly to my sister and then thought I would want to stay and play. Well maybe I could have handled that one better, but he helped me learn loyalty and how to fight for someone you love even when it's scary. I learned that words once said can't be taken back and though you may forgive there are some things you just never forget.

Prov. 17:9 He who conceals a transgression seeks love,
But he who repeats a matter separates intimate friends.

It's the friends from camp, youth devos, and sleepovers that taught me the value of open and honest sharing of the heart. It was talking long into the night till you fell asleep, getting up early to get the hot shower and a place to plug in your curling iron. It was the process of learning that sometimes someone can be really nice to your face, yet they will rake you over the coals when your back is turned. It was those friends who stood up for you even when they didn't agree with everything you believed and protected your innocence and learning not everything is black and white. I learned I could love people but not like their actions. It was the space to learn to stand up for my beliefs even while shaking because I didn't want to be different yet God calls us to be different.

Prov. 18:24 A man of too many friends comes to ruin, But there is a friend who sticks closer than a brother.

2 Cor. 3:4-6 Such confidence we have through Christ toward God. Not that we are adequate in ourselves to consider anything as coming from ourselves, but our adequacy is from God, who also made us adequate as servants of a new covenant, not of the letter but of the Spirit; for the letter kills, but the Spirit gives life.


It's the blessing of older women showing me how to love my husband. It was precious souls who when Mama wasn't there to talk to (remember this was before cell phones and even us not having a telephone because groceries were more important). There were couples who took a very young set of newlyweds under their wing and provided friendship and encouragement to keep doing good. It was precious souls who taught hard lessons on life in a beautiful life and a quiet bold voice. It was sweet folks who taught a young bride how to cook without a cookbook and how to be the wife God expected, not by what they said but by having me in their home and living it in front of me. It was sweet mamas who shared their littles with a young woman who very much wanted to be a mama, and taught me how to discipline and love all at the same time. How precious those ladies are and were!

Titus 2:3-5 Older women likewise are to be reverent in their behavior, not malicious gossips nor enslaved to much wine, teaching what is good, so that they may encourage the young women to love their husbands, to love their children, to be sensible, pure, workers at home, kind, being subject to their own husbands, so that the word of God will not be dishonored.

It was bringing into my life people who dealt with chronic illness and pain, yet lived beautiful lives of service to their families and the church. It was by being asked to ride and just be company to doctor's appointments and just being there in the house through the rough spots. It was sweet families who took care of a sick and scared you young school teacher and showed me how church family loves each other even when the only connection we have is the blood of Christ.

Rom. 8: 14-17 For all who are being led by the Spirit of God, these are sons of God. For you have not received a spirit of slavery leading to fear again, but you have received a spirit of adoption as sons by which we cry out, “Abba! Father!” The Spirit Himself testifies with our spirit that we are children of God, and if children, heirs also, heirs of God and fellow heirs with Christ, if indeed we suffer with Him so that we may also be glorified with Him.

It was listening to words spoken to my Mama and my Aunt when they lost their babies that taught me what to say and what not to say. It was watching church family care for us that taught me how to care for others. It's the people God sends to preach His word in actions and love. It's knowing that people can make grief bearable or unbearable with just the smallest slip of the tongue or act of kindness.

Prov. 15:4 A soothing tongue is a tree of life,
But perversion in it crushes the spirit.


I've been blessed with friends who when they came into my life the first time the connection didn't form, but that when God brought them back into my life later they have become family and encouragers. There are people who I may not see often, but when I do they make my heart lighter just by the sound of their voice or the words that appear on my computer screen. They help me see a glimpse of heaven here on earth with their love.

2Cor.13:5-10 Test yourselves to see if you are in the faith; examine yourselves! Or do you not recognize this about yourselves, that Jesus Christ is in you—unless indeed you fail the test? But I trust that you will realize that we ourselves do not fail the test. Now we pray to God that you do no wrong; not that we ourselves may appear approved, but that you may do what is right, even though we may appear unapproved. For we can do nothing against the truth, but only for the truth. For we rejoice when we ourselves are weak but you are strong; this we also pray for, that you be made complete. For this reason I am writing these things while absent, so that when present I need not use severity, in accordance with the authority which the Lord gave me for building up and not for tearing down.

God sent children for me to love all through my childhood and early adulthood. I learned quickly that love comes with high expectations, and real love demands good behavior and consequences when they're not met. He sent me sweet children who were hurting and wanted direction. He taught me that my heart could grow and stretch and hurt with the pain that wasn't my own. He sent me opportunities to love those who weren't “loveable” and reap the reward of them knowing I loved them and God loved them. I learned our world can be full of ugliness and pain, but that through LOVE we see God and grace and redemption. Yes, children taught me that lesson.

Matt. 19:13-14 Then some children were brought to Him so that He might lay His hands on them and pray; and the disciples rebuked them. But Jesus said, “Let the children alone, and do not hinder them from coming to Me; for the kingdom of heaven belongs to such as these.”

He used those who made comments that wounded a heart longing for babies, so I could learn how not to hurt others. He sent people I could watch from a distance and learn from on how to comfort someone who had lost a baby. Those have been so important. He sent friends who are adult adoptees who have willingly shared their story, and now I have some idea on what to expect as my sweet boy grows up with questions and longing and grief and joy all mixed together. He has stretched my heart and made room to understand that loving birth-parents doesn't mean not loving me.

James 1:26-27 If anyone thinks himself to be religious, and yet does not bridle his tongue but deceives his own heart, this man’s religion is worthless. Pure and undefiled religion in the sight of our God and Father is this: to visit orphans and widows in their distress, and to keep oneself unstained by the world.

It is amazing how a word spoken at just the right time in the past can continue to influence who I am today. It's people who took the time to ask a young couple about their dreams for their family and the church that helped create this middle aged couple standing on the edge of dreams answered or about to be answered. It's realizing that all along the way God has used us in just the same way with others, and being humbled at the thought. May God continue to send us people who touch us and allow us to touch them; so that, we can see God in every aspect of our life.

Jer. 29: 11-13For I know the plans that I have for you,’ declares the LORD, ‘plans for welfare and not for calamity to give you a future and a hope. Then you will call upon Me and come and pray to Me, and I will listen to you. You will seek Me and find Me when you search for Me with all your heart.

James 1:15-18 Then when lust has conceived, it gives birth to sin; and when sin is accomplished, it brings forth death. Do not be deceived, my beloved brethren. Every good thing given and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shifting shadow. In the exercise of His will He brought us forth by the word of truth, so that we would be a kind of first fruits among His creatures.


It is with the hope of the eternal that allows us to see beyond the past and the present moment to the eternal future with Him. May He bless us all, and may we see the opportunities to be His hands and feet.

Wednesday, December 31, 2014

A Time of Being Broken

This is one of those articles I'm not really sure I want to start or how to start, but here we go. If you know me at all, then you know I spend my time riding this crazy roller coaster called my life. I have days where pain seems to be the only thing I can see. Sometimes that's OK because I can see the blessings it has brought into my life, how it has shaped the person I am today, and even how I react to children who are dealing with sensory overload. I guess it's true that you have to walk in someone’s shoes to really get their personal journey.

So, I deal with the pain and so does my family and those who love me. I could spend a lot of time talking about just how we sit down at the beginning of a month and plan just how we want to use the meds so I can be an active part in family activities. It's not to cause drama or pity or attention, it's simply living my life. With all of that comes this great burden of guilt because I keep us from the fun, I've missed so many firsts just because they happened as they are supposed to naturally and out of the blue. The guilt is almost as hard to deal with as the pain. Then there's the anger that comes with dealing with it all, and the questions of why should I deal with this.

There are times when it's not entirely my fault and I feel like it's fair that my family has to share in the struggle. I know that sounds ugly but it's true. Maybe the day could have gone smoother if only...and you fill in the blanks. I push to do because I want to please those who live with this every day battle of pain with me. I'm willing to do more, and it maybe that it's just another few minutes, or delaying taking meds so I can drive. It's all OK, yet it's not.

It's at times like this the devil whispers sweet promises of not caring how what I say or do, or don't say or don't do isn't important. He whispers, “Just take the path of least resistance.” Do what makes those around you happy and do what you need to do to make them happy. Sometimes there really is nothing wrong with listening to those whispers, except that it makes listening and doing so much easier the next time.

So I feel broken, not just health wise, it really is such a small part of it. Broken in those small corners of the heart that only God and the devil sees. When I feel like Humpty Dumpty and no matter what happens can all the pieces really be put back together again. Am I so broken that the God I believe is all powerful and capable of all things and love beyond understanding can't put me back together because I've allowed the whispers of the devil to be what I listen to? The answer to that question is “NO”. God's spirit resides in that broken heart and continues to hear my pleas and carry them to the throne of grace. Yet, I'm still broken. The parts that where fixed yesterday, have need of being fixed again today. The grief that comes with the what ifs and why nots, chip away at the heart I put in the keeping of the King when I paddled out to Daddy and he baptized me when I was 9.

Here is the answer, above all else, who holds my heart? Who can break it and put it back together again even better than it was before? The King of all Kings, the Alpha and the Omega, the great I AM is the keeper of my heart. Sometimes, He has to break it so it can be His again, and sometimes he softens it with humility and gentleness found in conversation with precious ones who are righteous and fighting their own battles, but willing to share in my fight and me in theirs.

James 5: 13-16 Is anyone among you suffering? Let him pray. Is anyone cheerful? Let him sing praise. Is anyone among you sick? Let him call for the elders of the church, and let them pray over him, anointing him with oil in the name of the Lord. And the prayer of faith will save the one who is sick, and the Lord will raise him up. And if he has committed sins, he will be forgiven. Therefore, confess your sins to one another and pray for one another, that you may be healed. The prayer of a righteous person has great power as it is working.

How thankful I am that we have promises like the one above! It lets me know what to do when all is right in my world, and it lets me know what to do when it feels as if I'm so broken I can't be put back together. The promise is there will be comfort. The comfort that comes with sharing just how broken you feel with someone you know won't judge you, and to learn that you aren't alone. This battle of life we fight was never meant to be fought alone. God tells us exactly how to win the battles. To confess (share) your brokenness with others. Be willing to drop the barriers and let them see what you feel is the ugliness of all that brokenness, and pray. PRAY!! Pray for each other and you will see the great power of God as it is working. I am not alone!! You are not alone!! We are together in prayer and as we go there and reach out our Father draws ever nearer to me and you.

Does this mean that there are days, moments, weeks when I don't feel broken? NO! Because I am still fighting and as long as I'm trying and working to live for the true keeper of my heart, He will always be there for me. You see, God doesn't move...I do. If I choose to listen only to the devil's whispers then I move myself further from the Father. But if I am humble and persistent and I don't give up, then my Father carries me close to His breast, and that heart that feels so broken is being mended and made perfect with each and every trial.

James 4:7-10 Submit yourselves therefore to God. Resist the devil, and he will flee from you. Draw near to God, and he will draw near to you. Cleanse your hands, you sinners, and purify your hearts, you double-minded. Be wretched and mourn and weep. Let your laughter be turned to mourning and your joy to gloom. Humble yourselves before the Lord, and he will exalt you.

Here I am standing at the end of another year feeling more broken than I ever have in so many areas of my life, yet I get to choose to submit myself to the will of the Father. As long as I keep resisting those whispers of giving in and giving up, I have the promise that all these tears I cry feeling like my world has fallen apart will be what purifies my heart and this broken spirit will be lifted up and exalted by the Father who is the true keeper of my heart. If I let Him keep my heart and I work to please him, then He will draw near to me and all those things the devil uses will flee. I can't get there by myself, but God has promised me and you that when we share those things we don't want the world to see with one another, and we pray together then we will see His power working through our prayers.

Dear Father, thank you for giving us your word with all its promises. Thank you for sending us righteous women and men who we can confess our sins to and in so doing magnify the power of prayer by adding more voices petitioning your throne. Be with us as we begin a new year and help us to please you in all we say and do. Help us to draw closer to you every day, and to resist the empty promises of the devil. Help me to let you be the true keeper of my heart and to put all my faith in you. In Jesus' name, Amen.

Wednesday, November 12, 2014

A Time to Fight

It's been a very long two months. It has felt as if we are having to fight battles on every side that we really shouldn't have to fight. The biggest battle has been with insurance companies and once again my White Knight is fighting for all he's worth. His armor has dings in it and yet he keeps fighting. He's been hit by friendly fire simply because he's the one delivering the message, but he keeps on fighting. I've watched days where I see him weary in ways I haven't seen since the beginning of this battle 16 years ago. You see this wonderful man is a Fix-It man and when he can't fix it then it becomes a huge battle for him.

We're looking at a procedure that if I'm in the 80% success rate would radically change our lives for the better. It would take the pain and interrupt it with electrical impulses. As it seems to be in everything, the insurance company has denied treatment and we are now working through the appeals process. To be honest at first I didn't even want to try this. We've been told so many times over the years that a particular treatment plan has a good success rate for chronic migraines like mine that to even hope becomes a little scary. This is where my sweetheart shines, he's there to listen, to hold me, and then to encourage. So we've now done everything we're suppose to do to prepare for the treatment.

Yesterday we checked off our final “have to” by talking to a psychologist who helps determine how you're dealing with the pain and if your coping skills are adequate. Part of the time was spent in the rehearsal of telling my story and how my pain works and how it affects our lives. I actually don't mind sharing the story anymore, but he has certain questions that he has to ask and that is the part I hate. He was very nice but he wanted to know if I ever get depressed. The answer to that one was “Yes sir I do. I miss out on family outings, church functions etc. and I'm home alone with just God, me, and the pain. I decided a long time ago that a finite hell here on earth is more doable than an infinite one, so I'm not going anywhere.” He then asked if I worry or have panic attacks because of fear of the headache. My answers was along the lines of...I know what my normal high level of pain is, so when the headache behaves like “normal” then I do deep breathing and visualization exercises and we get through it. When it's not normal and I get scared, I wake up my sweetheart and we breathe together until I get centered and the pain comes down enough to deal. I don't know why it always happens in the middle of the night or at church but it does. So that's how we handle it. He asked if it affects our home life...I'm thankful it was a phone consult. I rolled my eyes and went on to describe how we have named the house “The Bat Cave” and that what would have driven me nuts at the beginning of the headache I've learned not to sweat it. If the house isn't as clean as I'd like it to be or the clothes have piled up or the dishes haven't gotten done (all of these things require some type of repetitive noise that pushes the pain higher), then that's life and we worry about the most important things like relationships and loving each other. I told him we have learned to keep a supply of paper goods and plastic ware in the house because dishes aren't something that my sweetheart will do. He does do all the shopping and handles most of the errands and gets my little guy out of the house for some activity because Mama just can't always do it. I've learned to pick and choose what activities to do and when. I've learned that if on a good day I can do some small something outside the house then we're better off.

Anyway after 45 minutes on the phone, he tells me that I've really paid attention over the years and that my coping skills sound like their good and working and that I have a good support system in place. He then told me one of the things he was doing was finding out if I needed to be on something else to help with the depression or if I needed to learn some skills to help me move through the worst parts of the pain, and he felt like I was doing just fine, and he would get his report to the doctor who would be doing the procedure and we would hear from them once the insurance gives the go ahead. Finally he says now I need to collect my co-pay. At this point I handed the phone to my sweetheart because the headache plays with my vision and I can't see the numbers clearly on the card. It also gives the doctor a chance to hear my support system in action. I knew the doctor asked him how he was when my sweetheart said, “I'm hanging in there like a hair in a biscuit. It's been a long 16 years of watching her hurt and we really appreciate anything you can say that will help the insurance company see that we're ready for the procedure.”

I have to say I am very thankful to have this part finished. I'm ready to either hear a yes or no from the insurance company, so that we can learn what the cash cost of the trial procedure and implant would be. Then we can make long range plans. I know that whatever goes on God has this and we will get through this time of waiting just like we have so many other things. Ultimately we know God has this and we just have to do our part by keepin' on keepin' on.

I didn't quote any verses to the doctor while we talked, but he does know that my faith is what I cling to in this battle with pain. It's the unwavering faith that comes with the promises given over and over again. Philip. 4:13 “I can do all things through Christ who strengthens me.” James 5:16 “Confess your trespasses to one another, and pray for one another, that you may be healed. The effective, fervent prayer of a righteous man avails much.”
It's these promises and so many others that get me through. Please pray with us as we hurry up and wait again. Pray that God will give us healing whether through this procedure or something else. Ask him to grant us contentment and peace in the waiting and ask that we glorify Him in all we say and do.

Thanks for listening and praying. Thanks for being there for our little family and for helping us to remember that we are a part of God's family and it is more numerous than we know and that faithful men and women pray for us daily. We feel those prayers. They are what God uses to see us through those long, dark hours of pain. May our Heavenly Father bless all us, and may we look to Him as we prepare and anxiously await His return.

Wednesday, November 5, 2014

A Time of Doubt

Romans 12:9 Love must be sincere. Hate what is evil; cling to what is good. 10 Be devoted to one another in love. Honor one another above yourselves. 11 Never be lacking in zeal, but keep your spiritual fervor, serving the Lord. 12 Be joyful in hope, patient in affliction, faithful in prayer. 13 Share with the Lord’s people who are in need. Practice hospitality

Working hard tonight on v,12. The first part to be joyful in hope...I've got that part figured out for the long term, but the short term is more of a struggle. Who really wants to smile when pain seems to be the status of every single part of the day. I can find joy in the small things like a husband who does laundry (actually that's a big one), my young man who chose to hit the punching bag outside after school instead of in his room, and that supper was easy enough to put together w/o much effort.

The hardest part is being patient in affliction. I'm tired of waiting, tired of fighting a battle that feels never ending. I'm ready to have answers. I'm ready to find something that makes all of this just so much easier. It's been a long 16 years! Time spent in waiting rooms, time spent in the dark awake because the pain is ugly, time spent sitting at home instead of next to my guys as they worship the Father at church but I'm stuck at home because I hurt. I'm tired of the guilt and the questions that come with how chronic pain affects our whole family. I tired of some small part of me deep down inside wondering if maybe just maybe I'm not praying the right way...is my faith not really strong enough.

The faithful in prayer part...well I think I've got that covered. I know that God is carrying me through this journey. I know that it is His strength that gets me out of bed, sets up school assignments, and carries out some small tasks around the house. It's his strength that got us out of the house just to ride down the rode a little while with the radio on and the sun shining in on us. I know that the Son lights the way every day.

Yet the Deceiver, he's been busy too. He's the one who fills up that section deep down inside with guilt and doubt. He's the one who whispers, “It's been a rough pain day take it easy don't push, you'll make the next service.” He's the one who I allow to take my contentment for the day and bury it in frustration over what I can't do.

So am I losing this battle...maybe, will I lose the war... NO!!! I can do what I need to do. I can count my blessings. I can notice the beauty that the Father puts in front of me at every turn. I can know without a doubt that the war has already been won. Christ has done that already, it's in the knowing that it's not about being the best Mama in the world or that person who tries to smile even though everything seems to be falling apart. It means I finish the race to the best of my ability giving God the glory and honor no matter the difficulty.

It's knowing that hating the bad things in this world is okay, because Christ said so. It's knowing that I find the good things and I tie my knot there and cling to them. It means I love even those I don't feel much like loving because God loves me at my ugliest. It's in realizing that I have a spiritual family that encompasses more people than I realize. It's knowing there are precious people who are sent my sweetheart's way who listen to all he has to bear and then takes the time to pray for him, for me, and for the pain to leave us be. It's in the recognition that we are not alone not ever. It's knowing that as long as I take care of my little section of the world, all those doubts and frustrations they don't have to control just how I look at the world.

God created me and you to be his daughters. He made me a daughter of the ruler of the Most High King. He made me special so that there has never been anyone just like me before or after my time here. He has promised me a room in His house for all eternity...all I have to do is finish the race. He doesn't ask me to do it a top speed, sometimes it's a shuffle, a step, or sometimes it's all Him carrying me just because I am His and He is mine.

He may not ask me to give money or to open my filthy house to visitors, but He does ask me to open my heart and share just what I've learned from pain. It's opening my heart and taking a chance of being judged instead of loved. It means that I comfort those who may just be starting this difficult path, or maybe it's allowing someone to see the flaws in me, so that they can see the perfection of the Creator. Hospitality takes on new meaning when many days are spent inside a dark house. It means admitting to my tween-aged son that I really blew it. It means apologizing for curt replies to questions asked. It means encouraging even when I don't feel like encouraging. It's accepting that I have no control over some of the things in my life, and changing the ones I can. It's taking the time to remember that I don't always say what I think I said because that's just how the headache works. It's trying to remember to use a kind tone when asking for things to get done around the house. It may even be remembering what it was like to be the little kid who felt like she carried the world, and that my big boy may feel that way too.

It means I get still and let God have His way with me. It means finding ways to store up scripture and songs in a brain that has a hard time remembering just what this sentence was supposed to say. It's allowing the Holy Spirit to take my petitions to the Savior who will then take them to the Father. It's believing in the hope of today and tomorrow and eternity. It's taking life moment by moment and being thankful for the opportunity.

Father help me to keep my eyes on you, my heart open to those around me, and to give forgiveness even when it hasn't been asked for. Help me to be who you want me to be, help me not to be jealous and help me not to focus on the can'ts but the cans. Thank you for being with me in all things. In your son's name, Amen.

Thursday, July 17, 2014

The Hem of His Garment


Matt. 9:20 And suddenly, a woman who had a flow of blood for twelve years came from behind and touched the hem of His garment. 21 For she said to herself, “If only I may touch His garment, I shall be made well.” 22 But Jesus turned around, and when He saw her He said, “Be of good cheer, daughter; your faith has made you well.” And the woman was made well from that hour.

I've spent a lot of time in this passage that talks about the woman with an issue of blood and how she had spent all that she had to find a way to stop it. I identify with her because over the past 16 years as a family, both immediate and extended, we've spent lots of money searching for the cause of my headache. But finances are not what draw me to this passage over and over again. It's the faith of this women and her incredible courage. According to Jewish law and tradition, she had spent the last 12 years of her life unclean, that also meant that anything she came in contact with or anyone who touched her was unclean as well. Those people who chose to maintain contact with her knew that they would be unclean until evening after visiting with her. How incredibly alone she must have felt! Women in general were not to even look men in the eye when out in public let alone talk with them. Yet she had heard about the Master and decided to take the leap of faith and work her way through a crowd that was so thick around Jesus that his apostles wondered why He would ask who touched Him when she touched the hem of His garment.

She was willing to risk everything for the chance to be close to Jesus. How tired she must have been just moving about on a regular basis considering she had dealt with an issue of blood for 12 years. I can imagine that it took all the strength she had to be a part of that crowd and work her way to the Master. Her faith was so great that she didn't feel like she had to talk to Jesus. I imagine after spending 12 years in an unclean state she didn't even feel worthy enough for Him to lay eyes on her. Yet she knew that He had healed so many and the opportunity was one she could not pass up. In my mind's eye, I see her as the Savior turns to her and asks who touched Him. She probably wished the earth would open up and swallow her right then and there. Yet she was brave enough to admit that it had been her that touched Him. I can only imagine what joy she felt when the Savior told her that not only was she healed, but she was forgiven of her sins and she was made clean. For 12 years she spent her life living on the fringes of Jewish society because of the laws that dealt with having an issue of blood. Now she could reenter society. She would once again be clean and able to worship in the temple.( Imagine 12 years without the fellowship of the brethren.) The place where we draw our greatest source of strength, she had been denied for 12 years.

With just a few words, Jesus changed her whole life and made her clean. This is the freedom we read of in Hebrews, that the blood of Christ has cleansed us once and for all and so long as we strive to do His will His blood continues to cleanse us. We can do away with the self-doubt, the self recrimination, and the questioning of our faith. Jesus has allowed us to not only touch the hem of His garment, but to place our fingers in his nail scarred hands and the gash in his side. What a blessing to no longer worry if we have offered the right sacrifice in the right way, because He was the ultimate sacrifice.
We also can see from Matt 14: 35 (And when the men of that place recognized Him, they sent out into all that surrounding region, brought to Him all who were sick, 36 and begged Him that they might only touch the hem of His garment. And as many as touched it were made perfectly well.)and
Mark 6: 56 (Wherever He entered, into villages, cities, or the country, they laid the sick in the marketplaces, and begged Him that they might just touch the hem of His garment. And as many as touched Him were made well.) that she set an example that other's followed. In her courage and faith, she gave others another way to contact the healing powers of Christ. In the hardest of times, God promises us that He will use all the things in our life for good. How encouraging that thought is!

So I can rest in a safe assurance of knowing that my headache is not something I suffer because of a lack of faith, a sin I've commited that is unforgiveable(there is no such sin) but that it is a part of the human condition and the fact that because of sin pain and suffering are a part of this world. I can know that as long as I hang onto the Father, He'll not let me fall and that He will find away to make all this world's pain work together for good. When we" touch" the hem of His garment, we won't receive a miraculous healing like the women with the issue of blood, but we can know we will spend an eternity with Him where there is no pain, tears, or loss.

Tuesday, July 15, 2014

What's It Feel Like

It's been a very long time since I've written specifically about what it's like to live with this ugly old headache. I don't want this to be a "whining post" or an "old poor me type post"; however I do believe that to really know me now, you must know what is going on in my head. So here we go, I'll do my best to put into words what the headache feels like.

To begin with since the pain is constant, there is always some type of background noise in my head. Many times it's just the constant throbbing of the pain (those are the good days). Other times, it feels and sounds like a stake being pounded from the back of my head to the front. With that comes the light and noise sensitivity, most days normal inside lighting feels like the bright sunshine in the middle of the day. If we go outside or places with brighter lighting it's like having all the lights in the football stadium on and shining directly into my eyes. I have some people who have not seen my eyes and on the off chance they see me without sunglasses some of them don't even recognize. There are times that even in the dark the headache itself has a light show that goes on even when my eyes are closed. It's painful and draining simply to deal with just that part. Then you add to that the noise sensitivity. Repetitive noises, squeals, and high pitched sounds are the hardest, but there are also times when just the sounds of a room full of people talking feels like it's being put through a megaphone. Sometimes out of nowhere even small sounds can feel like they come through an air horn.

I know that I am guilty of snapping at people during times when I'm dealing with both sets the noise and the light. It's a knee jerk reaction like yelling “Ouch” when someone steps on your toes. Over the years, my sweetheart has been the one to sit and watch me cry after pushing to be out and about. He is forever my protector and will work to prevent this amount of extra pain when he can. There have been many times when I'm sure people have found us to be very rude, because in stereo we will express displeasure if the noises is one that isn't necessary.
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For this reason, it has to be a good day for us to choose to eat out. If the restaurant is one that is full or one that noises bounce off the walls, it becomes even harder. When I was teaching school the lunchroom was the hardest place to be, now it's usually the fellowship hall at church. I want to be a part of family gatherings, church dinners, and conversation before and after church. I will push to the point of needing to make a trip to the ER(which doesn't work for me and is a complete waste of time, but that's how ugly the pain is). There are times when the pain in my head is soo loud I feel like I have to yell over it. There have been times when I wanted to stand in a chair and yell “Shut up” from the top of my lungs. I've learned how not to do just that, but I may leave quickly after services or in the middle of a meal. It doesn't mean that I don't want to be a part of things or that I want to stop all the wonderful visiting and fellowship, so I leave. If my sweetheart sees me leave, he follows relatively quickly and we take home a very disappointed little boy.

I'm not saying all of this to hinder those I love from making a joyful noise when they are together. I just want you to know that I'm not mad or don't want to spend time with you, it's just that I've reached my capacity for handling it all.

As always, it is my prayer that my words are kind and my disposition sweet, but on those days when I fail I ask that you take the above into consideration and forgive me. Many thanks to all. Please keep us in your prayers. There are many times when our plans have to change at the last minute and I'm home alone. It is during these times when the devil tries to work on my faithfulness. Your prayers are coveted. Thanks for reading.

Thursday, July 10, 2014

Please Heal Me

I wrote this song about 2 months ago. It was one of those rare moments when it all just seemed to flow. It's still a little rough and there are few little things I am waiting to change, but it also feels like its time to share it. I've tried to add a link for the melody, but I haven't had any luck getting my program to work. I'm ready to share the lyrics and we'll pray I can come back later with a link to how I hear it in my head. The fight with the headache and sin in general are ever present. Hoping this helps someone else as much as it's helped me. P.S. Remember, I'm sharing the depths of my heart with you. May God bless all of us with healing.


Please, Heal Me by Samantha Moore

Father, hear my plea
I'm tired and I long for thee.
This life is hard,
It's full of pain
But I have faith, you'll come again.

Chorus:
I have faith.
You are strong.
Heal this heart,
Make me whole.
Just let me touch the hem of your robe, Lord.
Please heal me.

The days move on, the nights are long.
My heart is full of hurt again.
Please Lord, listen to me.
Dry my tears and let me sing.

Chorus:
I have faith.
You are strong.
Heal this heart,
Make me whole.
Just let me touch the hem of your robe, Lord.
Please heal me.

My Sins are many,
Your love is great.
I want to walk with you each day.
I long for you, the rest you bring.
Precious Lord, forgive me.

Chorus:
I have faith.
You are strong.
Heal this heart,
Make me whole.
Just let me touch the hem of your robe, Lord.
Please heal me.

I'll Shout your praises,
Sweet, Sweet Savior
Even when this soul feels torn.
You've made me your 's
Savior hear my song.
Make my your will my own.

Chorus:
I have faith.
You are strong.
Heal this heart,
Make me whole.
Just let me touch the hem of your robe, Lord.
Please heal me.

Oh, help me, Lord,
To keep my eyes on you.
Please let me in this crowded world,
To just hold onto the hem of your robe.
For I know you are my way home.

Chorus:
I have faith.
You are strong.
Heal this heart,
Make me whole.
Just let me touch the hem of your robe, Lord.
Please heal me.

Saturday, May 17, 2014

A Four Letter Word...Hope



I haven't written much since the beginning of the year and once again it's because we have dealt with a longer period of high pain levels. I can say that the last 4 weeks have been better, but the battle with pain is constant. It is only through the power of prayer that I have pushed through each day. It has meant that we as a family have had some hard times because it is incredibly hard to be sweet when the only thing you want to do is bury your head under the pillows and stay in bed.

It is only through hope and faith in God's promises that I've been able to get done the absolutes as Mama and wife. It has been because with each moment there is the belief that God is able to take my pain away either in this life, in his return or in death. It is because hope is such an important part of every moment that I decided to see just how many times the word hope occurs in the Bible. It occurs 167 times in 159 verses in the NIV version of the Bible. It occurs 18 times in the book of Job, 31 times in the Psalms, 10 times in Proverbs, 7 times in Jeremiah, and 9 times in the book of Acts. When you take a look at where the word is used most frequently it is in times of pain or trials. When Job and his friends are talking Job questions why he still hopes and his friends question if he has enough faith in his hope. In Lamentations 3:19-33, Jeremiah offers up this prayer:

19 I remember my affliction and my wandering,
the bitterness and the gall.
20 I well remember them,
and my soul is downcast within me.
21 Yet this I call to mind
and therefore I have hope:

22 Because of the LORD’s great love we are not consumed,
for his compassions never fail.
23 They are new every morning;
great is your faithfulness.
24 I say to myself, “The LORD is my portion;
therefore I will wait for him.”

25 The LORD is good to those whose hope is in him,
to the one who seeks him;
26 it is good to wait quietly
for the salvation of the LORD.
27 It is good for a man to bear the yoke
while he is young.

28 Let him sit alone in silence,
for the LORD has laid it on him.
29 Let him bury his face in the dust—
there may yet be hope.
30 Let him offer his cheek to one who would strike him,
and let him be filled with disgrace.

31 For no one is cast off
by the Lord forever.
32 Though he brings grief, he will show compassion,
so great is his unfailing love.
33 For he does not willingly bring affliction
or grief to anyone.

He reminds us that God wants only good for those who love him and obey his will. He reminds the people that though they have been torn from their homes that God has not forgotten them. It is so often through suffering that God allows us to minister to others. It gives us a perspective on the pain others feel. It helps us to know how someone might be best helped during periods of grief or isolation. So yes, we can be thankful for the tough times. They bring us to our knees which is where we are closest to the Father. It refines our character and makes us better for the pain or trial we've endured. Hope is a four letter word that should be at the very center of who we are, for it is only through hope that we can get through the moments, days, weeks, and years of suffering. May we find strength in knowing we serve a God who hears each heart felt plea and stores our tears in a bottle. He is not blind to our pain and there is joy to be found in the comfort he sends our way.

Are we keeping our eyes and heart open for the answers and comfort he sends? If we fill our hearts with bitterness, then we will lose sight of the joy and comfort that can be found in even our darkest moments. It may come in the form of an article we read, a smile, someone who has been there and listens, and it can come from jumping in water puddles after the rain. It may come in quick hugs and “normal” conversations and it comes in the form of prayers being prayed by many that we don't even know.

It has been all of these things that have seen us through this last 6 months. It's been cards received in the mail, and the recalling of scripture hidden in my heart. We thank you as a family for all you do for us. For those of you who I've never met yet you read my blog, you to have been a source of encouragement. When I'm house bound and unable to teach in a class setting, you allow me to continue to carry out the command to teach. It helps me to feel useful to the kingdom even when I sit alone at home in the dark.

The last four weeks have also restored a portion of hope. To be able to get out in the sunshine and to spend time with my boys away from the house has been medicine to my soul. It has been a blessing to celebrate another triple shot of blessings that come from Agape's Run For a Mom, Mother's Day, and Gotcha Day celebrations. It is being able to be at church surrounded by both my physical and spiritual family while my sweet boy presents a lesson that he put together without my help. It has reminded me that each day holds blessings without number, and that I can conquer the blows that the Deceiver sends my way because God hears and answers prayer.

May your day..life be filled with hope in the knowledge that God does care and He is with us. In all things may we bring honor and glory to the Father, amen.
Consider the Lilies
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Saturday, December 14, 2013

A Time of Truth


Sometimes in our hurt and frustration anger becomes the avenue for saying things that need to be said but at a time when the fire is no longer burning. I have to admit that this is one of my big weaknesses. I hate confrontation and would much rather smooth ruffled feathers than deal with the issue at hand. I will put those things off until I explode. First of all, this is NOT how our Heavenly Father intends for us to deal with things.

Psalms 4:4 Be angry, and do not sin.
Meditate within your heart on your bed, and be still.
Eph. 4:26-27 “Be angry, and do not sin”: do not let the sun go down on your wrath, nor give place to the devil.

If I would just remember to do things God's way then things would go much better. My little man is becoming a tween-er and quick. He doesn't mind saying what he thinks, has a strong sense of right and wrong, and can be very loud, and repetitive. All of these qualities will do him so much good as he gets older that I don't want to squash them. However, our house is a headache house. We live with low lighting as quietly as possible, so that, my head doesn't feel like it is going to pop off. We literally use migraine meds for church and then a special day out. I guess I'm trying to say that he knows just which buttons to push and boy have we been on a roll lately. If I would handle each infraction as it happened then we might not have as many times of anger.

If I would think through the issue that is really the problem and pray about how to face it, then things would go a lot more smoothly. But to be honest, there are days when I promise it feels like he wants to find out just how much my head can take...will Mama cut the assignment short or put off til tomorrow those sentences that need diagramming. Yes, there are days it works for him....shame on me. I set a precedent that says let's test the odds and see if we can achieve the same thing next day or the next. I did it to my Mama too. If we could just stretch those boundaries then fun could be had. What he's doing is he actually wants to see if I care enough to make him do right. I know the psychology but the action can be so hard.

Mama/ Teacher isn't supposed to lash out, but do the job of getting school done. So when I laid into him all the pain that it felt like he wanted me to feel came spewing out of my mouth and onto him. There were things I said that needed to be said, but not yelled. He needed some time to think about what I said, but he didn't need to feel like I didn't want to deal with him. He needed to know just how tired I am and how hard it is to make school happen some days, but he didn't need it the way I did it.

He has every right to be frustrated and tired too. Being stuck in the house isn't fun, and Mama not feeling like doing the field trips I'd love to do isn't fair. But God didn't promise us this life would be fair. He found out that many days I feel guilty because I do have the headache and yet we adopted him anyway. I know that there are times when he must wonder what it would be like to have a Mama with no headache and who could have had a house full of siblings for him to play with, fight with, and share memories with. We had the headache under control when we decided to adopt...oh, there it is not my plans, but God's?! I don't believe for one minute that the Father enjoys me dealing with pain anymore than I want to see my sweet boy in pain.

So where did the anger come from: the pain, the repetitive noise, the singing the answers to questions at the top of his lungs when I'm sitting right next to him...no, not really all that anger comes from the Deceiver. By letting things go and go, I gave room for Satan to put his foot in my home. I didn't fix things the way God would have me to. So I'm trying and he's trying, and we are going to scale school back a little and do the easy academics and work on the hard cleaning out of anger and frustration in our souls. We'll do it as a family. He knows that I can't begin to imagine my life without him. He taught me how to laugh and smile again. He's taught me that God can take a heart that's broken into pieces and when it's put back together again it has even a bigger capacity to love.

Now before I let you go, I'd like for you to think with me about how when we sin, don't you think that our Father is hurt because of our lack of concern for His place in our lives. If we hurt when our children have done wrong, how much more so does the Father when we are risking eternal life?! It's made me stop and realize again the power of grace and mercy when combined with humble obedience to the Word. May God forgive us of our wrongs and may He help us to deal with anger the way He wants us to; so that, we don't allow the Deceiver a foothold in our homes. May we recognize when breaks are needed and when time in prayer is absolutely necessary before taking the next step or saying that next word.

I promise the next time I write, I'll leave this topic alone for a while. Isn't it wonderful how God forgives and makes us new!

Acts 26:18 ‘to open their eyes, in order to turn them from darkness to light, and from the power of Satan to God, that they may receive forgiveness of sins and an inheritance among those who are sanctified by faith in Me.’

Tuesday, August 14, 2012

Headache History and Pride

Wow! The summer is over and school is back in session and all the writing I had planned to do…just didn’t get done. We were blessed to complete our second full year of home schooling, run the Fun Run part of Agape’s Run for a Mom, send little man off to camp for a week, see some sweet friends that we haven’t seen in forever, completed 4 weeks of swimming lessons, and last but not least went to Art and Science classes at our local hardware store for an hour each Wednesday and Thursday. The best part is the headache cooperated and I was able to do the chauffeuring.

Praise God for the new medicine combo I’m on now, I can actually handle traveling a couple of hours without having to go to bed once I get there. So things are looking better pain wise for us too J Instead of living with the level 9 or 10 , it now stays around the 7 or 8 level. We do deal with spikes up further than that, but we are also blessed with short periods of time with it lower too. It’s been a long time since I’ve really spent anytime sharing the pain battle and why I use the word we when I talk about it. When one person in the family deals with chronic pain, then the whole family does. Our schedules, the lighting in our home, laundry getting done, and how we play are all determined by the headache.

One of the hardest things, I’ve had to come to grips with is that the migraine does put limits on what I can do. It also, along with the meds, affects my ability to say what I want to say when I want to say it. One of the meds has turned off the filter in my head…you know the one that says don’t talk about that you can hurt someone’s feelings…or hey shut your mouth for a few minutes and listen to what the other person has to say. It also has made me more grouchy and I get frustrated much quicker than I normally do. These side effects are not new to us, we had tried a med combo very much like the present one but one of the meds caused even more cognitive and behavioral “glitches”.

Needless to say the 2003-04, school year was a difficult one. I think I was going through just as many mood swings as my 7th graders. Pride can be a terrible thing, I kept most of the struggle to myself. (Pro 16:18 Pride goes before destruction, And a haughty spirit before a fall.)My sweetheart was running two small business and we had an infant/toddler in the house who got all of our “extra” attention. In fact, I had been dealing with quite a bit of paranoia and irrational anger that I was able to keep the lid on at home and for the most part at school. However, I found myself becoming more and more out spoken and I couldn’t seem to put the brakes on my mouth. Here’s where the pride thing comes into play, because I have always considered myself to be a peacemaker. I could put my feelings on the back burner and deal with the situation at hand and it was really no big deal. Well, it became a big deal. I now know that many chronic headache patients on Topamax deal with these changes..it’s been labeled dope-amax on the Head pain sites by patients and many of them dealt with swift changes in mood that ultimately lead to their being fired or even for some led to divorce. In my case, my contract wasn’t renewed. I can look back and see why. But maybe…just maybe if I hadn’t let my pride get in the way things may not have happened the way they did.

I’ll say this, it’s a scary thing to not be in control of your emotions when you’re used to being in control. Learning that I have no real control is another lesson the headache has taught me the hard way. It has literally brought me to my knees, pleading in prayer for the pain to end. (If you happen to be one of those who believes that my faith is just not strong enough and I’m not praying in faith ..,yes I’ve heard this before…then I suggest you need to take a look at the life of Paul and God’s response to his begging for the thorn in the flesh to be removed.) I now understand there is no me, there is only God and His power working in me. (2 Cor. 12:9 but he told me, “My grace is enough for you, because strength reaches completion in weakness.“ I will therefore boast in my weakness most gladly, so that Christ’s strength will remain upon me.) If it were just me, I would have taken my life a good 10 years ago while going through withdrawal from prescription meds that I was taking as prescribed.

It was another point of pride with me that I was able to finish college with good grades while being married and be labeled as the world thinks “smart”. It becomes very humbling when you realizes that people can’t understand what you’ve said either because the migraine has words coming out in a jumble you don’t intend, the words are so slurred it sounds like you’re drunk, or you know what you want to say but cannot get the words to come out of your mouth. On top of this, my eye would droop or twitch for no reason, my mouth would pull down on one edge, and the act of brushing my hair would actually hurt. So here I am teaching, high school math, to teenagers with all this going on; and they are looking at me like I’m the side show. But my pride kept me from mentioning that I felt like someone was watching me always, and that every step I took was painful…let alone that my teeth were beginning to break if I ate anything remotely hard.

So, we get to the last 2 or 3 weeks of school, they tell me they aren’t going to renew my contract…and all I can see is how are we going to keep the insurance going in all this mess…and I better go see about every little thing between now and September. I found out that afternoon I had stress fractures in both heels thanks to the med. Combo and no teaching position to go to for the next year. Actually we sat and cried together and I finally let my sweetheart know to what extent I was dealing with the paranoia and anger. We prayed and as always God provided just what we needed. Not just job wise, but for our marriage as well. He gave us the quiet before the storm to help us charge our batteries, and He put good friends close by that we could lean on even in the hardest of times.

I’d love to say that we no longer deal with pain every day. I do. I also know that the med combo I’m on now is very close to the one we dealt with that school year. So I deal with glitches in speech, I get grouchy easy, but so far we’ve been able to manage it. I want the people I know and love to know where I’m coming from and instead of trying to hide any issues this go round… I’d much rather they be out on the table so we can stop them if they get ugly.

I’m a firm believer in the fact that God will work out all things for good for those that love Him.(Romans 8:28 We know that to them who love God, the ones called according to his purpose, God works all things together for good;) Notice he doesn’t promise the way will be easy and good, but that he will use all those things in our life for good. Finally, my prayer for myself and you is that we will take the hard times…those moments when we feel like God has turned His back on us…and know that He is refining us and using us so that through our weakness others may see His strength. (1Peter 1:7 Your faith (which is more precious than gold which perishes, being proved by fire) has been tested that you might be found in praise and glory and honor at the disclosure of Jesus Christ.)

N.T. scriptures are quoted from McCord’s New Testament Translation of the Everlasting Gospel. O.T. scriptures are quoted from the NKJV.